Hello my name is Nicola
Welcome to our website which details our experience with PAH (Pulmonary Arterial Hypertension.)
Our aim with this website is to bring greater public awareness to this condition and to act as a support base and discussion board to other people who are living with this condition.
We look forward to getting to know some of you through this interactive website.
Pucker Up 4 PH
LETS BE FRANK
That time of year again..
As winter is fast approaching and with it the fear of flu and colds, I wonder if anyone has any great tips to get them through this tricky time of year for us. I tend to avoid crowds in winter. Obviously I have the flu vaccine and if I do get a cold, I drink plenty of homemade lemon and honey drinks. Any other great ideas out there?
A Different Perspective
While watching TVNZs “Attitude” last weekend, I saw an interview with Emily Perly Kingsley. Below is what she has to say about raising a child with a disability. I liked it and hope you can relate to some of it either as a PH patient, friend or family member.
Welcome to Holland |
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| I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experienceto understand it, to imagine how it would feel. It’s like this . . . (continue reading…) | ||
Invisible or Not?
I was unable to hide the fact that I had PH when I was diagnosed from family, friends and colleagues. However, that is not always the case with a diagnosis. We call PH an invisible illness and in many ways it is, as looking at us (unless we have oxygen) we look exactly like we used to. In fact I was always been told how great I looked and I had never looked better (probably due to the fact that I had lost about 5 kgs). Is it easier to remain “normal” in the eyes of our acquaintances or is it better to disclose our health issues? (continue reading…)
Equipment – Help or Hinder?
Is it time to join the blue rinse brigade?
So much for my beach holiday, I was struck down with shingles on the 1st of January and am still experiencing the nerve pain. Hence the lack of blogs.
A while ago my health deteriorated quickly, when I left hospital I was armed with a walker (why are they all green?) complete with matching wire basket, a bath board, a hand shower kit and an appointment with an occupational therapist from my district health board. Don’t get me wrong I appreciated all the support. However, it was all a little daunting for a 32 year old.
NZ PAH Association
This website is a resource developed by NZPAH to act as a community to support, educate and promote awareness of PAH to assist in improving the quality of life for our members.
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